Advertisement

Stephen Michael Bailey

Advertisement

Stephen Michael Bailey

Birth
Death
3 Oct 2017 (aged 51)
Baltimore County, Maryland, USA
Burial
Nottingham, Baltimore County, Maryland, USA Add to Map
Memorial ID
View Source
JULY 16, 1966 – OCTOBER 3, 2017

Stephen Michael Bailey, a longtime survivor of genetic disorder Duchenne Muscular Dystrophy, died on Tuesday, Oct. 3 at his home in Baltimore County, Md., surrounded by devoted family and friends. He was 51 years old.

In many ways, Steve was just like any other person. He loved movies (Forrest Gump was his favorite). He loved going to concerts and had a deep appreciation for music. He enjoyed Chinese food and all things crab-flavored. He loved being outside and watching the Ravens play on Sundays. He was a patient, encouraging friend. A devoted son. Cherished brother. Loving uncle.

But in reality, Steve's life was far from normal. At the age of five, he was diagnosed with a rare neuromuscular disease, Duchenne Muscular Dystrophy (DMD). DMD is a degenerative disease that causes the muscles in the body to atrophy until a person loses all ability to move or breathe.

As a second grader, he struggled to run and join his classmates on the playground at recess. By 7th grade, he was in his first wheelchair, and by the time he reached his early twenties, he could no longer feed himself or breathe comfortably on his own. For his last twenty years, he was confined to an automated wheelchair, on a ventilator, and cared for by nurses and family members.

Though by any physical measure he was as weak as could be, he is remembered by all who knew him as man of incredible strength, joy and perseverance.

"Steve was the toughest guy I've ever known," says friend and neighbor Baltimore County SWAT officer David Garner. "And I know a lot of tough guys!"

"If anyone had a reason to complain in this life, it was Uncle Steve," reflects his niece, Kaitlyn Bailey. "But that just wasn't him. In the twenty years I knew him, I literally never heard him complain about the fact that he couldn't run or eat or breathe on his own. If anything, it was the reverse. He would listen to all of us complain."

Though he faced countless limitations and frustrations, he approached each day with a gracious heart, thankful for every breath and eager to find and fulfill his purpose.

"Steve firmly believed that God had a purpose for his life," recalls his older brother, John Bailey, Jr. "He never questioned why he was here. He viewed his condition as an opportunity to encourage and serve as a champion for others struggling with this disease."

Stephen had a younger brother, Thomas Bailey, who also suffered from Duchenne. Their shared struggle inevitably forged a strong, unique bond between the two brothers. Tom lost his battle with DMD in 1999 at the age of 32 after finishing his autobiography Moving Mountains Without Muscles, an account of his life living with DMD, the challenges he faced, and the lessons he learned along the way.

Together, Stephen and Tom were poster kids for the local Muscular Dystrophy Association. For years, their family was a staple at the annual Jerry Lewis Labor Day Telethon, raising awareness and funds to support research for the disease (as of today, there is no cure). One year, Stephen and Tom even co-hosted the telethon, amazing everyone with their positive outlook and passion for finding a cure, even though their bodies were beyond help. As Stephen weakened in his final days, he remained a loyal MDA supporter and contributor, connecting with other Duchenne patients online to offer them wisdom and encouragement.

As one of the oldest survivors of the disease, Stephen's life was a source of hope and inspiration to many Muscular Dystrophy patients and their families. He was told he wouldn't see his twentieth birthday – instead, he lived to be 51, nearly tripling his life expectancy.

"In the early days, we lived in constant fear, holding our breath," says Stephen's father, John Bailey. "Eventually we realized he was going to live. That was a turning point for our family. Every day was a miracle."

Though Duchenne had a tight hold on his life, Steve was never defined by his disease. First and foremost, he is remembered as a man of great faith and impact.

If you've ever watched the Christmas classic It's a Wonderful Life, you've seen George Bailey grapple with his identity and purpose. He feels defeated, until his guardian angel Clarence comes on the scene and reminds him of the impact he has had on so many people's lives.

"Funny, isn't it?" remarks Clarence to George. "Each man's life touches so many others."

It's truly remarkable how many lives Stephen touched in his 51 years. When the news broke of Stephen's death, countless people came forward, sharing stories of how their life was changed for the better because of him.

"I first met Stephen at a bake sale that his sister Carol Anne put on to raise money for MDA," recalls longtime family friend and caregiver, Kathy Diegert. "From there, I got involved with the local MDA camp and eventually became a caregiver for Stephen and Tom. The years and experience I gained caring for Stephen and Tom equipped me to care for my mother when she got sick. Because of them, I had 15 more beautiful years with my mother."

"I lost my brother years ago to Muscular Dystrophy, right around when Steve lost Tom," says family friend, Karin Bauer. "We kind of adopted each other as siblings. I don't know how I would have survived that loss without Steve's friendship. He could understand in a way that no one else quite could."

Despite his disease, he never doubted or questioned his faith in God – the priests at his local parish would often marvel at his steadfast belief in God's faithfulness and love. Throughout Stephen's life, he held tightly to the promise offered in his favorite Scripture verse – Isaiah 40: 30:

Even youths grow tired and weary and young men stumble and fall, but those who hope in the Lord will renew their strength. They will soar on wings like eagles. They will run and not grow weary. They will walk and not be faint.

"That's what he's doing right now," says his niece, Lorianne Walker. "Mask off, chair gone, legs running free. He's finally free of that body and for that reason, we can't help but celebrate."

Services
Visitation
Sunday, October 8, 2017

Chrisitan Wake Service
Sunday, October 8, 2017

Funeral Service
Monday, October 9, 2017

Interment
Monday, October 9, 2017
*********************************
On October 3, 2017 Stephen Michael Bailey passed away.
He was the beloved son of John F. Bailey and the late Marion L. Bailey (nee Fries); devoted brother of John F. Bailey, Jr, Carol Anne Celozzi and her husband Dominic, and the late Thomas C. Bailey; cherished uncle of Kaitlyn and Kristina Bailey, Lorianne, Rachel and Andrew Walker, Anthony, John-Paolo and Rosa Celozzi; loving godson of Carol Nolan. He is survived by his beloved caregivers Peggy Slocumb, Angela Lahm, Wendy Gee, Cecile Stafford, Joan Gay, and his former caregiver and best friend Donna Breter. He is also survived by many loving family members, friends, and former caregivers.
Relatives and friends are invited to visit at Schimunek Funeral Home Inc., 9705 Belair Rd. Nottingham, MD 21236 on Sunday from 2-4 and 6-9 PM, with a Christian Wake Service at 8 PM. A Funeral Mass will be celebrated on Monday at 11:00 AM at St. Joseph Catholic Church (Fullerton). Interment will follow at St. Joseph Cemetery.
In lieu of flowers memorial contributions may be made to honor Stephen and the many friends he has lost to the Muscular Dystrophy Association, 8501 Lasalle Rd. Towson, MD 21286.
Online tributes may be left at www.schimunekfuneralhomes.com.
JULY 16, 1966 – OCTOBER 3, 2017

Stephen Michael Bailey, a longtime survivor of genetic disorder Duchenne Muscular Dystrophy, died on Tuesday, Oct. 3 at his home in Baltimore County, Md., surrounded by devoted family and friends. He was 51 years old.

In many ways, Steve was just like any other person. He loved movies (Forrest Gump was his favorite). He loved going to concerts and had a deep appreciation for music. He enjoyed Chinese food and all things crab-flavored. He loved being outside and watching the Ravens play on Sundays. He was a patient, encouraging friend. A devoted son. Cherished brother. Loving uncle.

But in reality, Steve's life was far from normal. At the age of five, he was diagnosed with a rare neuromuscular disease, Duchenne Muscular Dystrophy (DMD). DMD is a degenerative disease that causes the muscles in the body to atrophy until a person loses all ability to move or breathe.

As a second grader, he struggled to run and join his classmates on the playground at recess. By 7th grade, he was in his first wheelchair, and by the time he reached his early twenties, he could no longer feed himself or breathe comfortably on his own. For his last twenty years, he was confined to an automated wheelchair, on a ventilator, and cared for by nurses and family members.

Though by any physical measure he was as weak as could be, he is remembered by all who knew him as man of incredible strength, joy and perseverance.

"Steve was the toughest guy I've ever known," says friend and neighbor Baltimore County SWAT officer David Garner. "And I know a lot of tough guys!"

"If anyone had a reason to complain in this life, it was Uncle Steve," reflects his niece, Kaitlyn Bailey. "But that just wasn't him. In the twenty years I knew him, I literally never heard him complain about the fact that he couldn't run or eat or breathe on his own. If anything, it was the reverse. He would listen to all of us complain."

Though he faced countless limitations and frustrations, he approached each day with a gracious heart, thankful for every breath and eager to find and fulfill his purpose.

"Steve firmly believed that God had a purpose for his life," recalls his older brother, John Bailey, Jr. "He never questioned why he was here. He viewed his condition as an opportunity to encourage and serve as a champion for others struggling with this disease."

Stephen had a younger brother, Thomas Bailey, who also suffered from Duchenne. Their shared struggle inevitably forged a strong, unique bond between the two brothers. Tom lost his battle with DMD in 1999 at the age of 32 after finishing his autobiography Moving Mountains Without Muscles, an account of his life living with DMD, the challenges he faced, and the lessons he learned along the way.

Together, Stephen and Tom were poster kids for the local Muscular Dystrophy Association. For years, their family was a staple at the annual Jerry Lewis Labor Day Telethon, raising awareness and funds to support research for the disease (as of today, there is no cure). One year, Stephen and Tom even co-hosted the telethon, amazing everyone with their positive outlook and passion for finding a cure, even though their bodies were beyond help. As Stephen weakened in his final days, he remained a loyal MDA supporter and contributor, connecting with other Duchenne patients online to offer them wisdom and encouragement.

As one of the oldest survivors of the disease, Stephen's life was a source of hope and inspiration to many Muscular Dystrophy patients and their families. He was told he wouldn't see his twentieth birthday – instead, he lived to be 51, nearly tripling his life expectancy.

"In the early days, we lived in constant fear, holding our breath," says Stephen's father, John Bailey. "Eventually we realized he was going to live. That was a turning point for our family. Every day was a miracle."

Though Duchenne had a tight hold on his life, Steve was never defined by his disease. First and foremost, he is remembered as a man of great faith and impact.

If you've ever watched the Christmas classic It's a Wonderful Life, you've seen George Bailey grapple with his identity and purpose. He feels defeated, until his guardian angel Clarence comes on the scene and reminds him of the impact he has had on so many people's lives.

"Funny, isn't it?" remarks Clarence to George. "Each man's life touches so many others."

It's truly remarkable how many lives Stephen touched in his 51 years. When the news broke of Stephen's death, countless people came forward, sharing stories of how their life was changed for the better because of him.

"I first met Stephen at a bake sale that his sister Carol Anne put on to raise money for MDA," recalls longtime family friend and caregiver, Kathy Diegert. "From there, I got involved with the local MDA camp and eventually became a caregiver for Stephen and Tom. The years and experience I gained caring for Stephen and Tom equipped me to care for my mother when she got sick. Because of them, I had 15 more beautiful years with my mother."

"I lost my brother years ago to Muscular Dystrophy, right around when Steve lost Tom," says family friend, Karin Bauer. "We kind of adopted each other as siblings. I don't know how I would have survived that loss without Steve's friendship. He could understand in a way that no one else quite could."

Despite his disease, he never doubted or questioned his faith in God – the priests at his local parish would often marvel at his steadfast belief in God's faithfulness and love. Throughout Stephen's life, he held tightly to the promise offered in his favorite Scripture verse – Isaiah 40: 30:

Even youths grow tired and weary and young men stumble and fall, but those who hope in the Lord will renew their strength. They will soar on wings like eagles. They will run and not grow weary. They will walk and not be faint.

"That's what he's doing right now," says his niece, Lorianne Walker. "Mask off, chair gone, legs running free. He's finally free of that body and for that reason, we can't help but celebrate."

Services
Visitation
Sunday, October 8, 2017

Chrisitan Wake Service
Sunday, October 8, 2017

Funeral Service
Monday, October 9, 2017

Interment
Monday, October 9, 2017
*********************************
On October 3, 2017 Stephen Michael Bailey passed away.
He was the beloved son of John F. Bailey and the late Marion L. Bailey (nee Fries); devoted brother of John F. Bailey, Jr, Carol Anne Celozzi and her husband Dominic, and the late Thomas C. Bailey; cherished uncle of Kaitlyn and Kristina Bailey, Lorianne, Rachel and Andrew Walker, Anthony, John-Paolo and Rosa Celozzi; loving godson of Carol Nolan. He is survived by his beloved caregivers Peggy Slocumb, Angela Lahm, Wendy Gee, Cecile Stafford, Joan Gay, and his former caregiver and best friend Donna Breter. He is also survived by many loving family members, friends, and former caregivers.
Relatives and friends are invited to visit at Schimunek Funeral Home Inc., 9705 Belair Rd. Nottingham, MD 21236 on Sunday from 2-4 and 6-9 PM, with a Christian Wake Service at 8 PM. A Funeral Mass will be celebrated on Monday at 11:00 AM at St. Joseph Catholic Church (Fullerton). Interment will follow at St. Joseph Cemetery.
In lieu of flowers memorial contributions may be made to honor Stephen and the many friends he has lost to the Muscular Dystrophy Association, 8501 Lasalle Rd. Towson, MD 21286.
Online tributes may be left at www.schimunekfuneralhomes.com.


Sponsored by Ancestry

Advertisement