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Saul Ampelio Alvarez Rodriguez

Birth
Tijuana, Tijuana Municipality, Baja California, Mexico
Death
8 Feb 2017 (aged 43)
San Diego County, California, USA
Burial
Burial Details Unknown Add to Map
Memorial ID
View Source
Saul A. Alvarez
(1973 - 2017)
Saúl Ampelio Alvarez Rodríguez was born on June 19, 1973 in Tijuana B.C Mexico. From father Juan Ampelio Alvarez and mother Carmen Belia Rodriguez de Alvarez. Four years later Saul welcomed a sister, Yezabel Alvarez. From the time Saul was born, he displayed signs of involuntary eye movements called nystagmus. This forced his parents to look for medical attention in Mexico City. Once there, Saul was diagnosed with Cerebral Palsy. The family returned to Tijuana. Saul grew up in Playas, a small and newly developed neighborhood. He went to Bambi preschool with his cousins, and attended Pestalozzi Elementary School for 1st and half of 2nd grade. He was home schooled for the latter half of 2nd grade and all of 3rd grade. By 4th grade he entered The Special Education School, a bit farther from home. In this school he met his best friend Sandra Alvarez, whom he continued in contact until a few months before his passing. There he also met his other friends Marla, Enrique, Eduardo and Juan. Due to his condition, Saul had 17 surgeries throughout his life. His first one was when he was 3 years old. Many of them were due to his dislocated hips. Some happened in Tijuana, others in San Diego Rady Children's Hospital and Shriners Hospital in Los Angeles. By the late eighties, Saul developed scoliosis. His parents were forced to look for medical services once again in Mexico City. On the summer of 1989, the family traveled to Mexico City where he had hip surgery. Although the plans were to have a second major spinal surgery to fix his scoliosis by placing metal rods on his spine, it was canceled by the parents. They realized they were putting Saul's life at risk when they saw the lack of medical advances in the field when treating small children. With Saul on their arms they returned to Tijuana, and set their sights on San Diego for continuity of care. In the summer of 1990, the family immigrated to San Diego. Once there Saul attended Southwest Middle, Southwest High, and Chula Vista High. Throughout his time there, he made many friendships that continued until his last breath. In late 1991 he had the first intervention at San Diego Rady Children's Hospital. In the beginning of 1992, Saul had his spinal surgery. Though, the decision was the right one to save his life, Saul developed chronic spinal pain that never went away. He suffered in silence, as he was further confined to his thoughts and prayers to deal with the excruciating pain. Almost 13 years later, on November 2004 his spine contracted a major infection along the metal rods. He was intervened once again, this time as an adult at UCSD Hospital. The metal rods were taken out without the need for a second surgery to place new ones. However the surgery almost cost him his life, and the recovery was long and painful. Three months after the surgery, he was home, and during the process of recovery, Saul had a gallbladder surgery. After the surgery, Saul developed respiratory issues and had to be intubated three times in less than 48 hours. After this incident, Saul starting having epileptic seizures that lasted for the remainder of his life. Saul would not have a serious inpatient hospitalization until 2016. Saul's parents had spent 19 years catheterizing Saul every 4-6 hours, due to his bladder problems. Catheterizations introduced recurrent urinary tract infections that required Saul to be regularly on antibiotics. In time, Saul's infections became resistant to most antibiotics. By October 2016, he had become immune to all oral antibiotics. His infections began to be treated at the hospital by IV. The time in between one infection and the next became less and less. The family went through multiple hospitals hoping to stabilize the infections. Saul visited Chula Vista Sharp, UCSD and finally per his neurologist request, to Mercy Scripps Hospital in a period of 4 months. By the time Christmas came around, his health was deteriorating rapidly. His parents and sister began treating the infections themselves through IV at home with the help home health services. His infections and the strong antibiotic medicine increased Saul's seizure activity. On December 28, 2016 he was admitted at Mercy Scripps Hospital after developing continuous seizures that prevented him from speaking, drinking and eating. Saul had a 3 weeks non-stop seizure episode. WIth the help of Saul's neurologist, his body was stabilized as he was put on 4 different anti-seizure medication. This put Saul on a sort of sleeping spell from which he barely came out of. While at Mercy Hospital, Saul had his first brain MRI along with a genetic test to confirm his condition. 3.5 years earlier his nephew, Leonardo, was diagnosed with a Leukodystrophy by the name of Pelizaeus Merzbacher Disease (PMD). A rare genetic, hereditary, and deadly disease with <200 known cases in the USA. On February 2nd, 2017, the results came back, and Saul was officially diagnosed as a patient suffering with PMD. Saul had his last surgical procedure done in January 2017. The doctors placed a J-tube to help him eat, drink, and take his medications. After 5 weeks in the hospital, arrangements were made to bring Saul back home with palliative and hospice care. However, Saul's health continued to decline after coming back home. After only 6 days home, on Wednesday February 8, 2017 at 4:20pm Saul earned his wings. Although the difficulties of his life were tough, Saul's positive spirit and contagious smile, brought light to the people who met him. He taught us all the importance of perseverance, love and resiliency. He touched the lives of everyone who knew him in a very special way. Without him knowing, Saul set an example of living life to the fullest. He will be deeply missed by his parents, sister, brother-in-law, niece and two nephews, along with other family members and friends. Arrangements under the direction of Glen Abbey Mortuary, Bonita, CA.

Funeral Services Provided By:
Glen Abbey Mortuary
3838 Bonita Road
Bonita, CA 91902
(619) 498-4600
Saul A. Alvarez
(1973 - 2017)
Saúl Ampelio Alvarez Rodríguez was born on June 19, 1973 in Tijuana B.C Mexico. From father Juan Ampelio Alvarez and mother Carmen Belia Rodriguez de Alvarez. Four years later Saul welcomed a sister, Yezabel Alvarez. From the time Saul was born, he displayed signs of involuntary eye movements called nystagmus. This forced his parents to look for medical attention in Mexico City. Once there, Saul was diagnosed with Cerebral Palsy. The family returned to Tijuana. Saul grew up in Playas, a small and newly developed neighborhood. He went to Bambi preschool with his cousins, and attended Pestalozzi Elementary School for 1st and half of 2nd grade. He was home schooled for the latter half of 2nd grade and all of 3rd grade. By 4th grade he entered The Special Education School, a bit farther from home. In this school he met his best friend Sandra Alvarez, whom he continued in contact until a few months before his passing. There he also met his other friends Marla, Enrique, Eduardo and Juan. Due to his condition, Saul had 17 surgeries throughout his life. His first one was when he was 3 years old. Many of them were due to his dislocated hips. Some happened in Tijuana, others in San Diego Rady Children's Hospital and Shriners Hospital in Los Angeles. By the late eighties, Saul developed scoliosis. His parents were forced to look for medical services once again in Mexico City. On the summer of 1989, the family traveled to Mexico City where he had hip surgery. Although the plans were to have a second major spinal surgery to fix his scoliosis by placing metal rods on his spine, it was canceled by the parents. They realized they were putting Saul's life at risk when they saw the lack of medical advances in the field when treating small children. With Saul on their arms they returned to Tijuana, and set their sights on San Diego for continuity of care. In the summer of 1990, the family immigrated to San Diego. Once there Saul attended Southwest Middle, Southwest High, and Chula Vista High. Throughout his time there, he made many friendships that continued until his last breath. In late 1991 he had the first intervention at San Diego Rady Children's Hospital. In the beginning of 1992, Saul had his spinal surgery. Though, the decision was the right one to save his life, Saul developed chronic spinal pain that never went away. He suffered in silence, as he was further confined to his thoughts and prayers to deal with the excruciating pain. Almost 13 years later, on November 2004 his spine contracted a major infection along the metal rods. He was intervened once again, this time as an adult at UCSD Hospital. The metal rods were taken out without the need for a second surgery to place new ones. However the surgery almost cost him his life, and the recovery was long and painful. Three months after the surgery, he was home, and during the process of recovery, Saul had a gallbladder surgery. After the surgery, Saul developed respiratory issues and had to be intubated three times in less than 48 hours. After this incident, Saul starting having epileptic seizures that lasted for the remainder of his life. Saul would not have a serious inpatient hospitalization until 2016. Saul's parents had spent 19 years catheterizing Saul every 4-6 hours, due to his bladder problems. Catheterizations introduced recurrent urinary tract infections that required Saul to be regularly on antibiotics. In time, Saul's infections became resistant to most antibiotics. By October 2016, he had become immune to all oral antibiotics. His infections began to be treated at the hospital by IV. The time in between one infection and the next became less and less. The family went through multiple hospitals hoping to stabilize the infections. Saul visited Chula Vista Sharp, UCSD and finally per his neurologist request, to Mercy Scripps Hospital in a period of 4 months. By the time Christmas came around, his health was deteriorating rapidly. His parents and sister began treating the infections themselves through IV at home with the help home health services. His infections and the strong antibiotic medicine increased Saul's seizure activity. On December 28, 2016 he was admitted at Mercy Scripps Hospital after developing continuous seizures that prevented him from speaking, drinking and eating. Saul had a 3 weeks non-stop seizure episode. WIth the help of Saul's neurologist, his body was stabilized as he was put on 4 different anti-seizure medication. This put Saul on a sort of sleeping spell from which he barely came out of. While at Mercy Hospital, Saul had his first brain MRI along with a genetic test to confirm his condition. 3.5 years earlier his nephew, Leonardo, was diagnosed with a Leukodystrophy by the name of Pelizaeus Merzbacher Disease (PMD). A rare genetic, hereditary, and deadly disease with <200 known cases in the USA. On February 2nd, 2017, the results came back, and Saul was officially diagnosed as a patient suffering with PMD. Saul had his last surgical procedure done in January 2017. The doctors placed a J-tube to help him eat, drink, and take his medications. After 5 weeks in the hospital, arrangements were made to bring Saul back home with palliative and hospice care. However, Saul's health continued to decline after coming back home. After only 6 days home, on Wednesday February 8, 2017 at 4:20pm Saul earned his wings. Although the difficulties of his life were tough, Saul's positive spirit and contagious smile, brought light to the people who met him. He taught us all the importance of perseverance, love and resiliency. He touched the lives of everyone who knew him in a very special way. Without him knowing, Saul set an example of living life to the fullest. He will be deeply missed by his parents, sister, brother-in-law, niece and two nephews, along with other family members and friends. Arrangements under the direction of Glen Abbey Mortuary, Bonita, CA.

Funeral Services Provided By:
Glen Abbey Mortuary
3838 Bonita Road
Bonita, CA 91902
(619) 498-4600

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