|Bio and Links|
I am a disabled wife and mother of a tween boy as well as having 3 dogs. I enjoy (in no particular order): history (and have since I was very young), reading (esp. historical items as well as historical fiction), spending time with my family, digging into health issues as well as being a genealogy buff who enjoys finding information on family members. I have only been active in the last year after a 3 yr absence from all hobbies thanks to what I refer to as the "long vacation", which was FAR from a vacation, unless you count it a vacation from housekeeping! |
I got sick in Dec. 2008 and by Jan. 2009 was seriously ill. I spent much of the time from 14 Dec. 2008-14 Jan. 2009 hospitalized, then on 22 Jan. 2009, I was hospitalized again, I was not alert, I remember NONE of the time from mid-Jan through March 2009. I only remember bits & pieces of the time from March to May/June 2009. In addition to my normal illnesses that caused my disability, I had sepsis, cellulitis (resulting in a leg wound that left a large chunk missing from my leg), C Diff, almost constant UTI, bladder & kidney infections, as well as having multiple bouts of shingles (in my early 30s!). I was unable to walk or even stand. I had lost the use of my arms, so I was unable to feed or care for myself. I regained use of my arms & slowly became able to feed myself, do a few self-care activities, & finally was able to hold a book, which I'd been unable to do up until fall 2009.
Due to the numerous medications I was on prior to this illness, as well as the fact I had reduced levels of activity due to my disability, I had gained quite a lot of weight. But because I had problems with digestive issues, as well as a lack of appetite combined with the inability to keep food down, I dropped more than half of my body weight & ended up being somewhere around 90lbs. It was not until a feeding tube was inserted that the problems with my stomach were resolved & the areas of my digestive tract that were almost ulcerated began to heal. I finally was able to begin keeping food down with regularity in the fall of 2009 as well.
In Nov. 2009 I was transferred from the hospital to a nursing home. It was NOT a place I EVER expected to live at the age of 32! But, I am so thankful that I went to the nursing home I ended up at. In the hospital, I was told I was not likely to walk again nor live outside of a hospital/nursing home again. I was unable to begin PT until spring of 2010, but even then it was not the appropriate thing for me, given that I'd been inactive since Dec, 2008. I needed to be given restorative nursing care where I was given stretching, passive range of motion, and then finally active range of motion. In Jan. 2011, I began PT. The physical therapist I had was AWESOME! He is the best PT I've EVER had. I first had PT back sometime in the mid 1980s when I was first diagnosed at the age of 7. Working just 3 days/wk for approx. 1hr/day, I began PT 5 Jan. 2011. On 29 Mar. 2011 I stood on my own (well I was using parallel bars & had a gait belt that my PT used to assist me in the motion of rising as well as allowed him to prevent me from falling) for the first time in 3 years. I then walked for the first time in 3 years on 18 Apr. 2011. I was able to leave the nursing home in Nov. 2011 & have been home for over a year.
I'd love to help others by taking pics and indexing cemeteries in my local area but my disability makes that impossible.