|Birth: ||Aug. 5, 2004|
|Death: ||Feb. 3, 2009|
Sophia Genevieve Langford could see the picture with her eyes closed.
In her final days, the 4-year-old filled in the images in her coloring books from memory, said Lynn Pasqualetti, a family friend known to Sophia as Auntie Lynn.
Sophia Langford had a snow day in her yard in December, courtesy of Stone Mountain Park.• Photos: Sophia's snow day
One eye blind and the other incapable of staying open, Sophia would push up her droopy right lid, briefly scan the picture of a princess or a pony and then color it after her eye closed again. Sophia then put a sticker on the page to remind her later to move on to the next one.
"She had a photographic memory," Ms. Pasqualetti said. "Even when she was almost unconscious, Sophia had to have her crayon in her hand and her book beside her or she would get uneasy.
"She had work to do."
Sophia died Tuesday morning at her Stone Mountain home after a 20-month battle with anaplastic medulloblastoma, an aggressive form of brain cancer. Sophia's father and mother, Wayne and Shirley Langford, were holding her when she died.
The memorial service will be 1 p.m. Saturday at St. Bartholomew's Episcopal Church in Atlanta. A.S. Turner & Sons is in charge of arrangements. In lieu of flowers, the family requests donations be made to the Brain Tumor Foundation for Kids, Camp Sunshine and Cure Childhood Cancer.
The Langfords ask all who attend to wear brightly colored clothes. "We want it to be a celebration of life," said Mrs. Langford. "Even with what she went through, especially at the end, she was a child who loved living and always would try to cheer you up no matter what the situation."
Mrs. Langford recalled that Sophia once said she wanted to grow up to be a "master cooker." Recently the child asked her mother if she could take her Blue's Clues pillows with her when she went to college.
"Even on the worst days there would be smiling, laughing and dancing," Mrs. Langford said.
Mrs. Langford said that after Sophia lost sight in her left eye, the girl turned the patch covering it into an accessory for her Halloween costume of Captain Feathersword, the friendly pirate character in the children's musical group the Wiggles. Sophia met the Wiggles at a concert last fall, the same day her mother and father discovered their daughter had lost most of her hearing.
Sophia's struggle became a public cause. A daily blog Shirley Langford wrote in the child's voice, and from Sophia's point of view, drew readers from across the world. Local news media outlets featured stories about Sophia,. On Christmas Day, CNN aired a story about the 30 tons of snow Stone Mountain Park blanketed over her yard. A friend, who had arranged the delivery of four dump trucks of snow, wanted to give Sophia a white Christmas.
Along with her parents, Sophia is survived by her 1-year-old sister, Fiona; and grandparents Jere and Wayne Langford Sr. of Sautee and Fe and Gary Simpkins of Kennesaw.
Created by: In Memory Of My DAD
Record added: Feb 07, 2009
Find A Grave Memorial# 33615938